ME/CFS Charitable Trust
Rotorua, New Zealand
ABOUT ME/CFS ROTORUA
ME/CFS Rotorua started about 1989, meeting in the QE hospital rooms. It grew from there and in 2000, it formed the ME/CFS CHARITABLE TRUST. Kathy Folley was one of the founding members of this group. It was her passion to help as many people as she could with ME/CFS. Kathy had many roles as a Trustee and did an amazing job.
Sadly Kathy passed away on 4th Feb 16.
The trust is carrying on the good work Kathy and others started, we have speakers coming around 3 times a year, coffee and craft get together's once a month.
We are working on getting info to doctors and nurses and also books into schools, as well as passing on updated information to people with ME/CFS ..
Dr Vallings is coming to talk to us about latest news from the IACFS conference in Florida, and I am sure she will have lots to tell us .
Place: Bainbridge Centre
187 Old Taupo Rd, Rotorua.
Date: Friday 2nd December
Time: 2.00 pm
Love for you to join us for coffee and a chat after.
Dr Ros Vallings
Dr Vallings has over three decades experience in the field of Chronic Fatigue Syndrome and is New Zealand’s leading authority on the illness.
She was recognised by the Queen in the 2008 New Year’s Honours when awarded the New Zealand Order of Merit (MNZM). Dr Vallings has served voluntarily for over 27 years as President of the Associated New Zealand Myalgic Encephalopathy Society (ANZMES) and latterly as Medical Adviser and Committee Member (www.anzmes.org.nz).
General practitioners throughout New Zealand refer patients with ME/CFS to Dr Vallings because of her specialist knowledge in this area. Dr Vallings has published a book entitled “Chronic Fatigue Syndrome/ M.E. - Symptoms, Diagnosis, Management. plus she now has a new book out, Managing ME/CFS - A Guide for Young People.
Dr Ros Vallings website
I am Ann Lemon the coordinator for the Rotorua ME/CFS group, really enjoying the role, have met so many lovely people, I am very keen to get out and help as many people as I can, plus educating our community on this illness.
I have had many years of dealing with CFS and other illness', as both myself and my daughters have suffered.
My first meeting with this group was about 17 years ago when meetings were held at the QE, it was a small group back then, but boy its grown now.
Please do not hesitate to approach any of us, the more I know what you need the more I can help you!
Please contact us if you need us , we can then let you know when we have our speakers coming, or maybe you would like to join us for coffee, which is free to members. Membership is $10.
We are very friendly bunch, who always manage to have a laugh and a great chat over coffee.
Details of who to contact is on the last page
Trust donates CFS books into schools
The above photo was taken by the Daily Post.
It was Kathy Folley's wish to get Dr Vallings books into all the schools in our area, which we did with the kind donation from Sir John Logan Campbell Residuary Estate.